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Announcement about Welltok
- Marshfield Clinic Health System has been informed by Welltok, Inc., a vendor that provides mailing services, that Welltok experienced a security incident that impacted some of our patients' personal information. Welltok will be reaching out to patients affected. Welltok is communicating directly with patients by letter about the situation and next steps. The letter from Welltok is not a scam. This incident did not impact systems at Marshfield Clinic. If you have questions, visit www.welltok.com for more information about the incident to view this notice.

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Announcement about Welltok
- Marshfield Clinic Health System has been informed by Welltok, Inc., a vendor that provides mailing services, that Welltok experienced a security incident that impacted some of our patients' personal information. Welltok will be reaching out to patients affected. Welltok is communicating directly with patients by letter about the situation and next steps. The letter from Welltok is not a scam. This incident did not impact systems at Marshfield Clinic. If you have questions, visit www.welltok.com for more information about the incident to view this notice.

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Additional BBS Resources

Support groups

Marshfield sponsors support groups for parents of children with BBS and adults with BBS. These support groups include a combined men's and women’s group and a women’s group.

Additional support groups are planned for the future. A book club is also available to anyone in the BBS community including parents and spouses.

Genetic Testing

Prevention Genetics, Marshfield, Wisconsin
Invitae, San Francisco, California
Athena Diagnostics, Worchester, Massachusetts

Giving

Marshfield Clinic Health System Foundation
Phone: 715-387-9249
Email: giving@marshfieldclinic.org

Other Resources

Related Links

BBS Multispecialty Clinic

Additional BBS Resources

Bardet-Biedl Syndrome Foundation

Families of Bardet-Biedl Syndrome Facebook Page

2020 BBS Virtual Conference

Make a Referral

Self-refer to the BBS clinic

Sign up for CRIBBS

From Their View

Patients share their experiences with BBS.

Mikyla Mobley

Reed Smith

Ellyn Hunter

Kristina Constant

Kristina Constant

BBS Blog Post

Image of child playing with building blocks

Rare disease clinic offers hope for patients with Bardet-Biedl syndrome

Bardet-Biedl syndrome is a rare genetic disease that affects about 3,000 people in the U.S. Read more

BBS Blog Post Right Rail

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