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Support Bardet-Biedl Syndrome Patient Care and Research

Center of Exxcellence for Bardet-Biedl Syndrome

​​​​​​​​​​​Bardet-Biedl Syndrome (BBS) is a rare, multisystemic genetic disease affecting less than 3,000 individuals in the United States. 

BBS can affect the eyes, kidneys, endocrine system, brain and more. The Center of Excellence for BBS at Marshfield Clinic Health System is the only clinic in North America providing comprehensive clinical evaluations and individualized treatment for BBS—and it’s only possible because of people like you.

Your support for BBS care and research helps or a multidisciplinary team of researchers, health care providers, dieticians, care coordinators and so many others care for an average of 15 BBS patients per month who travel from around the world for treatment.

Your donations also support the internationally-recognized Clinical Registry Investigating BBS (CRIBBS) with more than 650 BBS patients from more than 40 countries. Because the financial burden of traveling for specialized care can be overwhelming for some families, the BBS Angel Fund provides assistance to families facing hardship so they can afford to continue treatment. Support for a BBS Lions Camp held in central Wisconsin also helps BBS patients live full lives.  

Your gift today will enrich the health and quality of life for individuals affected by BBS. Thank you for supporting the Center of Excellence for BBS.

Additional resources and fundraisers:

BBS volunteer fundraisers​​

Volunteer fundraisers support research and patient care at the Center of Excellence for BBS. Upcoming volunteer fundraisers:

BBS Walkathon 

BBS Families Store

The Families Store is a great place to shop for T-shirts, sweatshirts, coffee mugs, hats and gifts.  Check out the new designs and products at https://www.cafepress.com/bbsfamilyshop . All profits from the BBS store will directly support the Center of Excellence for BBS.

BBS Family Cookbook

Click here to download (link to attached pdf) this free resource of healthy meals for BBS patients and families. Donations to the Center of Excellence for BBS are encouraged.

BBS Family Association  ​

Separate from Marshfield Clinic Health System, this nonprofit association is dedicated to improving the lives of individuals and families affected by BBS. The mission is to provide a community of support for individuals and families; information about BBS; and promote science and research to improve the lives of individuals with BBS. 

Learn more about the BBS Family Association >

Information about BBS care and research at Marshfield Clinic Health System.

Make your gift to BBS care and research: 

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